Long Covid Resources

• #1 Rule: Stop. Rest. Pace. Watch this video first. 

• Watch this short video explaining Pacing: https://youtu.be/USLg5FT86TQ 

• Pacing and Management Guide - #MEAction Network

  • Tip: If you don’t have the energy to do it twice, don’t do it at all.

• Read more about pacing here and here and this podcast here

• Spoon Theory: Spoon Theory PDF.pdf (wsimg.com) 

• Just In Time for the School Year: A New Pediatric Pacing Guide - #MEAction Network

• Post-Exertional Symptom Exacerbation — Long COVID Physio

• Top 3 Tips for managing Long Covid watch this video

• Read some helpful tips we wish we learned earlier in our Long Covid journey here 

• Pace yourself (see above)

• Drink Electrolytes: Hydration - Dysautonomia Support Network

• Wear Compression Pants

  • Best Compression Leggings For Long Covid Symptom Relief (refinery29.com)

• Nutrition: Diet & Nutrition - Dysautonomia Support Network

  • Nutrition Stategies for Managing POTS | Standing Up To POTS

  • 11-22-2020: Anti-Inflammatory Nutrition: Part 1 - Pulmonary Wellness Foundation

  • Anti-Inflammatory Nutrition: Part 2- Pulmonary Wellness Foundation

  • Celiac Disease post Covid 

  • Links – Nutrition for POTS, MCAS, dysautonomia, autoimmunity and related conditions (nutritionwithjill.com)

  • What the bleep can I eat?!

• Using a Heart Rate Monitor to Prevent Post-Exertional Malaise in ME/CFS & Long Covid - Solve ME/CFS Initiative (solvecfs.org)

• Long Covid Essentials Resource Sheets from Long Covid Justice x The Sick Times

• Canada Post-Covid and Long Covid Recommendations

• Three Year Outcomes of Post- Acute sequelae of Covid-19

• Long COVID: major findings, mechanisms and recommendations | Nature Reviews Microbiology

  • A MUST READ. Published 1/2023, this outlines all of the research, recommended treatment options, and explains the biological mechanisms.

  • You can watch this video here that also reviews the latest findings.

• The Long COVID Survival Guide: How to Take Care of Yourself and What Comes 

• Next―Stories and Advice from Twenty Long-Haulers and Experts

• There is an audiobook version of this available as well!

• Watch a short video of the Episodic Nature of Long Covid here 

• Holding Onto Hope — Awareness for POTSies

• The Sick Times- Chronicling the Long Covid Crisis

• Long Covid Weekly Newsletter- Reviewing the latest in research

• Dear Black Woman Newsletter 

• How to Support a Loved One with Long Covid

• How to Support your Friend with Long Covid or ME/CFS

• But You Dont Look Sick? support for those with invisible illness or chronic illness The Spoon Theory written by Christine Miserandino 

• Responses to Common COVID Minimizing Phrases

• Top support groups: www.wearebodypolitic.com/resources-for-providers 

• Support Groups | Long COVID Awareness

• Sunday Virtual (Free) Long Covid Zoom Meetings (7pm EST/ 6pm CST / 4pm PST): Join here

• The Black Long Covid Experience

• This is New App

• Turnto App

• Blooming Magnolia: https://www.bloomingmagnolia.org/ 

• Long Covid Kids - USA Public Group | Facebook

• Check this twitter thread for more support groups- https://twitter.com/itsbodypolitic/status/1442257413395173377?t=kYm2H_xBw58TLCf7r7Rn5g&s=19 

• Covid Conscious Groups around the world- Google Map Link Here

• 2025- Multidisciplinary Collaborative Guidance on Assessment and Treatment with Long Covid: Access it here

• A guide for Primary Care: https://www.bmj.com/content/378/bmj-2022-072117/infographic

• A Comprehensive Guide for COVID-19 Longhaulers and Physicians: 

  • Access it here

• Covid Competent Health Care Providers:

  • https://covidsafeproviders.com/ 

  • https://docs.google.com/spreadsheets/d/1qRz6jcMX2Yx7_prnJqdBQFXgVJE_CgZSlIYNshW3XJM/edit?usp=sharing

  • https://docs.google.com/spreadsheets/d/1_GZZT56EigH0qO1vaj15p5gvr5osJg70p6MV7foUhm4/edit?usp=drivesdk

  • Long Covid Doctor Map (longcoviddoctors.org)

• Dysautonomia International’s Find a Doctor With Experience in Autonomic Disorder:

  • http://dysautonomiainternational.org/page.php?ID=14 

• Therapist Directory: Covid Conscious Therapists

• Home | Covid Safe Dentists

• Mask Buying guide

• Post-COVID-19 Conditions in Children and Adolescents (aap.org)

• What Happens When Kids Get Long COVID? > News > Yale Medicine

• Dysautonomia International: Classroom Accommodations for Children with Dysautonomia

• Long Covid Kids Instagram

•  Guidance on “Long COVID” as a Disability Under the ADA, Section | HHS.gov 

• Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act (askjan.org)

• Navigating Workplace Accommodations and Employment with Dysautonomia 

• How to get on with a Disability

• Job Accommodation Network- Long Covid

• Work From Home Accommodation Request

• Project N95

• Find a Mask Bloc Near You

Review and add CO2 Tracking here

• Dysautonomia International: Postural Orthostatic Tachycardia Syndrome

• How to test yourself to see if you possibly have POTS:

  • PMTTT-Instructions.pdf (potscare.com)

• Orthostatic tachycardia after covid-19 | The BMJ

• Tips for saving energy bathing

• The POTScast | Standing Up To POTS

• Diagnosis and Management of ME/CFS

• ME/CFS + Long Covid - Solve ME/CFS Initiative (solvecfs.org)

• Home - #MEAction Network

  • Find Your Clinician - #MEAction Network

• MEpedia (me-pedia.org)

• Recovery from Chronic Fatigue Syndrome | One Person's Story by Bruce Campbell, PhD (recoveryfromcfs.org)

• ME_IC_Primer English 2012.pdf - Google Drive

• me-cfs-clinical-diagnostic-criteria-worksheet.pdf

What is EDS? - The Ehlers Danlos Society (ehlers-danlos.com) 

• COVID-19 and thyroid dysfunction: Study finds link (medicalnewstoday.com)

• American Thyroid Association | ATA

• Hypothyroidism Support & Information | Simply Hypothyroidism

• Watch this video intro on MCAS

• About MCAS | Mast Cell Action

• Fight Inflammation and Stabilize Mast Cells Naturally | The Institute for Functional Medicine 

• AIP and Histamine Intolerance - The Complete Guide (autoimmunewellness.com)

• Low Histamine Foods List for MCAS and Histamine Intolerance

• Sleep - Dysautonomia Support Network 

• LDN has been found to be an off label treatment for Long Covid:

  • https://www.medpagetoday.com/neurology/longcovid/99664

  • https://ammes.org/2022/07/09/safety-and-efficacy-of-low-dose-naltrexone-in-a-long-covid-cohort-an-interventional-pre-post-study/

• Guides & more details on LDN can be found here: 

• Video Consult: LDN Direct 

• Meditation

  • What Happens to My Brain When I Meditate? | Right as Rain by UW Medicine

  • Electrolytes For The Soul Meditation by Dr. Laurie Nadel

• Breathwork

  • Coronavirus Recovery: Breathing Exercises | Johns Hopkins Medicine

  • stasis.life

• Spend time outdoors

• Mindfulness (see below)

• Tapping

  • The Tapping Solution (EFT): How To Get Started

• Yoga Nidra Meditations: 

  • Ally Boothroyd | Sarovara Yoga 

• Vagus Nerve Meditations:

  • https://youtube.com/playlist?list=PL_e4yENCavCxVxS_Iqv-RTnLt9gd6Ghe5

• Free Mindfulness App: Click here

• Free Online Course on Mindfulness: https://palousemindfulness.com/ 

• Free 7 day guide on Mindfulness for Managing Long Covid | Breathworks (breathworks-mindfulness.org.uk) 

• Beth - A Friend for the Long Haul (@afriendforthelonghaul) • Instagram photos and videos

• Lauren Nichols, Psychic Medium (@laurenthemedium) • Instagram photos and videos

• Cynthia Adinig (@cynthiaadinig) • Instagram photos and videos

• Fiona Lowenstein (@fi_lowenstein) • Instagram photos and videos

• Hannah Davis (@ahandvanish) • Instagram photos and videos

• Carlos McCone (@loscharlos) • Instagram photos and videos

• LongCovidDoc (@longcoviddoc_) • Instagram photos and videos

• Crista Taylor (@cmtaylor41) • Instagram photos and videos

• BODY POLITIC (@wearebodypolitic) • Instagram photos and videos

• Long Covid Alliance (@longcovidalliance) • Instagram photos and videos

• Long Covid Kids USA (@lckusa) • Instagram photos and videos

• CVDRI (@cvdrecoveryinitiative) • Instagram photos and videos

• Blooming Magnolia (@bloomingmagnoliaorg) • Instagram photos and videos

• Patient-Led Research (@patientled) • Instagram photos and videos

• #MEAction (@meactnet) • Instagram photos and videos

• Massachusetts ME/CFS & FM Association (@mass_mecfs) • Instagram photos and videos

• Long COVID Physio (@longcovid.physio) • Instagram photos and videos

• Awareness for POTSies (A4P) (@awarenessforpotsies) • Instagram photos and videos

• Long Covid Families (@longcovidfam) • Instagram photos and videos

• Network for Long COVID Justice (@longcovidjustice) • Instagram photos and videos

• Mast Cells United (@mastcellsunited) • Instagram photos and videos

• Long Covid SOS (@longcovidsos) • Instagram photos and videos

• Long Covid Support (@longcovid) • Instagram photos and videos

• Dysautonomia International (@dysautonomiaintl) • Instagram photos and videos

• Long Covid Kids Instagram

• Long COVID Physio - YouTube

• Dysautonomia International - YouTube

• Gez Medinger - YouTube

• Mass MECFS & FM Association - YouTube 

• COVID-19 Rehab & Recovery Series - Pulmonary Wellness Foundation

• CoRE at Mount Sinai

• A Friend for The Long Haul| Podcast on Spotify

• The Long Covid Sessions (tlcsessions.net)

• Long Covid Podcast | Podcast on Spotify

• The POTScast | Podcast on Spotify

• Long COVID Physio | Podcast on Spotify

• The Canary Collective Podcast | Disability Resources

•  click here